Working with parents who have an intellectual disability

 

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The WASH House and the Intellectual Disability Rights Service are partnering to deliver a project. Sydney University are doing the research (PAR – participatory action research) and evaluation.

Project Aim:

  • To work with parents who have an intellectual disability (which we will also call learning difficulty/learning disability) to develop resources that will support parents who have an intellectual disability at the time when their children are placed in permanent care.

 

  • To ensure resources will be accessible to parents with varying cognitive abilities and cultural backgrounds.

 

  • To pilot the resources with parents who have recently had permanent orders for their children.

 

  • To share the resources.

Parents will give direction to the project:

  • Parents will be invited to participate in workshops to develop the content and ideas for the resources, to review the draft resources and participate in evaluation of resources and their role. Parents will receive a gift voucher for sessions attended ($50/session)

 

  • A small group of parents will be employed in the project to work alongside project workers and researchers. They will be members of the project reference group. The role will be titled ‘Coresearcher’.

 

Parents who have a lived experience of a child placed in permanent care will inform the direction and decisions throughout the project.

 

Due to the nature of the PAR process we will not know what issues/content parents want to address in the resource until the initial data is collected from parents.

 

The type of resources developed will be determined by the participating parents.

 

Characteristics of parents invited to workshops:

 

  • Parent has an intellectual disability (learning disability)

 

  • Has had a child placed in permanent care (final orders) at least 1 year ago. This is to ensure working in the project does not pose a risk of further trauma for parents.

 

  • Is happy to share their experience

 

  • Is able to work with others in a group

Characteristics of parents to work as co researchers in the project:

 

  • Parent has an intellectual disability

 

  • Has had a child placed in permanent care (final orders) at least 2 years ago. This is to ensure working in the project does not pose a risk of further trauma for parents.

 

  • Has the ability to think outside their own experience in order to participate in developing a resource for others. i.e. parent is able to consider other parents situations and does not have a sole focus on the particular issues that they experienced in child protection matters.

 

  • Is able to work with others in a group and work alongside project workers (with support) to complete other tasks.

 

 For more information or to refer interested parents please contact project workers:

 

Aimee (IDRS) on 9265 6300 M: 0439 998 603 or

Rachel (WASH House) on 9677 1962 M: 0477 823 831.

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